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December 19, 2005
The
Continuity of Care Record: A Bird’s Eye View of the EMR
By Laura Gater
For The Record
Vol. 17 No. 26 P. 21
This standard
has the potential to reshape healthcare.
The Continuity of Care
Record (CCR) is a standard specification that is being jointly developed
by the American Society for Testing and Materials (ASTM) International
E31 Committee on Health Informatics, HIMSS, the American Academy
of Family Physicians (AAFP), and the Massachusetts Medical Society
(MMS). The purpose of developing the CCR is to reduce medical errors,
improve continuity of care, and ensure at least a minimum standard
of health information transportability.
“The Continuity
of Care Record is a core data set of the electronic health record
[EHR],” explains C. Peter Waegemann, CEO of the Medical Records
Institute in Boston. “It is a snapshot in time that contains
only health status information and, in contrast to the EMR [electronic
medical record], does not contain documentation of management or
process information. The CCR will substitute for an EMR if the latter
does not exist in a provider setting; it may be integrated into
an EMR when a patient is seen for services and the provider has
an EMR; and it is created from the EMR if the provider has one.
The CCR is not to be mistaken for the discharge note.”
What
Is the CCR?
An EHR is comprised of all of a patient’s health information
found at his or her family physician’s office, specialists’
offices, and previous clinics. The EMR is enterprise-specific and
implemented at a hospital, physician’s office, clinic, etc.
The EHR, in other words, is the umbrella term for many EMRs. Many
CCRs contribute to an EMR, and many EMRs make up the EHR, notes
Waegemann.
The CCR is provider
focused because practitioners determine what information is most
relevant to the next provider—items such as family history,
insurance, advance directives, medications, immunizations, alerts
(allergies and adverse drug reactions), vital signs, procedures,
plan of care, and healthcare providers.
Dan Pollard, product
line director at Misys EMR in Raleigh, N.C., says the CCR is really
a standard way to move information in and out of an EMR.
“The CCR was designed
to address issues raised by the integration of EMR. The goal is
to get a standardized definition of EMR, which HL-7 [Health Level
Seven] is working on. The CCR is the first standard to be created
for the flow of that data,” says Jeff Sutherland, PhD, chief
technology officer at PatientKeeper in Boston. “The CCR is
designed to be a snapshot of a patient at one point in time, and
includes the patient’s demographic information, followed by
clinical information.”
Thomas E. Sullivan,
MD, president of the Massachusetts Medical Society, points out that
the CCR is a summary of the EMR and has great potential. “The
CCR is not a document. It’s a dataset, a snapshot of a person’s
medical record at any one time. Its most beneficial use is when
a doctor refers a patient to another doctor and wants to send an
extract of the EMR to the next doctor. He sends a standard dataset,
the CCR, to give a snapshot, or a summary, of the patient’s
EMR,” says Sullivan. “We, the Massachusetts Medical
Society, saw tremendous potential for the CCR, got the American
Medical Association, long-term care, patient safety, and other organizations
involved. We are willing to make changes; for example, doctors suggested
that immunization records be added to the CCR.”
Lying
in the Weeds
Despite some initial concern that the CCR plans were being overshadowed
by the national health information system (HIS) plan, that doesn’t
seem to be the case at all.
“The CCR is not
being overshadowed,” says Pollard. “Part of the challenge
could be people looking to do better things. The CCR is well defined.
There are very broad standards in the healthcare industry. I think
there is a risk of it being overshadowed by the national HIS, if
people continue to push in other areas.”
The CCR is compatible
with health information networks, according to Waegemann, and a
number of regional health information organizations (RHIOs) are
planning to use the CCR as the “glue” to create a health
network. He believes the CCR is a “great tool to establish
nationwide health information networks.”
What
Happens If the CCR Becomes a Standard?
The CCR is relevant to HIS and therefore needs to become a standard
component of the system. Its use and applications will then spread
worldwide.
“A national HIS
needs a concise, relevant summary because it isn’t going to
transmit everyone’s complete medical record,” explains
Sullivan. “For example, when you go to an ATM that is a thousand
miles from your bank, it doesn’t need your entire financial
record to complete a transaction. The CCR is a selective summary.
Without a standard summary, a nationwide HIS will mean nothing.
We, as practitioners and clinicians, define what should be in the
summary.”
Sutherland says the
CCR data will be embedded in an HL-7 message/template. A standards
committee will be created, which would establish key CCR principles.
Both the government and software vendors want one standard for storing
clinical information. The problem, according to Sutherland, is will
it be HL-7 or something else?
“I think the CCR
will improve the interoperability of the HIS system, and will become
the foundation on which a lot of other capabilities will be built,”
Pollard says. “The CCR will lead to other opportunities and
innovations in healthcare records, such as moving information and
integrating healthcare.”
Waegemann says the CCR
has been successfully balloted and was released in November as an
ASTM standard. “Some 60 EMR and PHR [personal health record]
vendors are ready to implement it, and so are a number of providers,”
he says. “We are also being approached by many specialty domains,
such as long-term care, to develop regional pilot projects. Next,
the CCR will be ‘internationalized’ and we will work
on international implementations.”
According to Sutherland,
the CCR has already been implemented by MedicAlert (a provider of
24-hour personal and medical ID alert services) for database structure
of a personal patient record to be distributed to hundreds of thousands
of MedicAlert clients.
The
CCR and HIM
HIM professionals will be involved in the creation, processing,
and integration of the CCR, allowing them to have a better understanding
of its use and application.
“One of the CCR
advantages is the fact that it can be printed out on paper and be
given to the patient. It can be faxed to a provider who does not
have an EMR, and so on. HIM professionals will be involved in these
processes,” explains Waegemann.
Since the CCR provides
a snapshot of a patient’s EMR, it seems that it can only make
HIM professionals’ day-to-day jobs easier by providing a synopsis
of the most relevant information. In turn, it should lead to improved
patient safety and less chances of a medical error occurring.
“Not all EMR data
is relevant, and much of it is sensitive and should be protected,”
Sullivan says. “The CCR will make HIM professionals’
jobs easier because they won’t have to guess what’s
pertinent or what information is relevant. Doctors and patients
will determine what is relevant to the CCR.”
Proponents believe the
CCR will make obtaining patient information much easier. With CCR—and
an EMR—physicians can access patients’ records by going
online. In years past, when patient records were needed, physicians
had to call one another, request the information by fax or mail,
and wait for it to arrive (if it didn’t get garbled in the
fax machine or lost in the mail). According to Sutherland, EMRs
save healthcare staff members at least 1.5 hours per week—improving
clinical productivity.
“The CCR solves
the problem of what medications the patient is on because patients
are a very poor mechanism for determining medications,” Sutherland
says. “The only way physicians can be sure of what meds they
are taking is by calling the patient’s pharmacy or pharmacies,
or by calling the insurance company. This is a huge patient safety
issue, along with having access to lab test results. In Massachusetts,
the safety benefits were a central driving force of the state’s
national health data system, and the CCR will also contain this
basic information that a physician needs [in order to improve patient
safety].”
Pollard explains that
the CCR will provide an opportunity for HIM professionals to reduce
duplicate work and more efficiently share data with patients and
other organizations. The CCR will change the focus of electronic
patient data to the interpretation of data. “I think the CCR
will simplify sharing data and change the nature of data sharing,”
he says.
As far as HIPAA is concerned,
Sutherland says security and privacy guidelines and specifications
for CCR document use and access will be published.
Pricing
CCR implementation will cost next to nothing, according to Waegemann.
“There is a nominal price that has not been established yet—around
$50—if someone wants to buy the full standard with all the
details. Alternatively, an ASTM membership is $75 per year and provides
free access to all ASTM Standards, including the CCR,” he
explains.
Sutherland says costs
may be borne by vendors such as PatientKeeper because adding the
CCR to current EMR software wouldn’t take more than a few
days to develop. “Larger vendors might not have an easy way
to integrate CCR with their systems, but for those vendors with
advanced software technologies that support internal operations
and have integrated engineering functions that already support HL-7,
versions two and three, it is a minor task to integrate CCR,”
says Sutherland. “There is a huge effort to build regional
IT centers to operate EMR software, including CCRs, and if this
succeeds, the infrastructure of all healthcare in the United States
will be significantly upgraded.”
The ASTM has even considered
the CCR being free to the healthcare community because of its importance
to patient safety, says Sullivan. The cost of the CCR is minimal—it
consists of taking an EMR program and interfacing it with CCR—but
somewhat variable, depending on the cost of the EMR software. Thirty
to 40 vendors are already adding CCR to their EMR applications as
an update or as a standard. The CCR merely requires a standard XML
interface. Vendors simply add the CCR as an update to current software,
one that can import and export data from an EMR.
CCR benefits such as
improved patient safety and more knowledgeable healthcare providers
far surpass the ultimate cost.
“Physicians and
other clinicians sometimes provide patient care without knowing
what has been done previously and by whom, resulting both in wasteful
duplication and in clinical decisions that do not take into account
critical data related to patient health,” says Waegemann.
“Some experts believe that the fact that most practitioners
have to act ‘blindly’ is the main reason for most medical
errors. The CCR is designed to improve continuity of care and reverse
the effects of providing patient care without knowing what has been
done previously.”
—
Laura Gater’s medical and business trade articles have been
published in Medical Imaging, 24x7,
Podiatry Management, Veterinary Forum,
Corrections Forum, and other national and online
publications.
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